We are delighted to have our tribe of chronic creatives expand to another talented artist with ME/CFS, Enora Eloi of France!
In her words: “A student in animation specialized in 3D modeling, I jumped the step for 3 years to make it my job!
My story begins at the age of 13 when I caught mononucleosis, which was supposed to be a simple passing infection turned into nightmares that have lasted since today.
I dreamed of becoming an astronaut, an adventurer, then when I grew up, a lutenist maker and a cabinetmaker. My last dream finally came true as I graduated and I was going to continue to become a lutenist maker.
But that wasn’t counting the return of the ME. I was not aware, at the time I was diagnosed with Lyme, despite the many negative results…
I had a moment of hope because after 6 long years of convalescence, I was much better.
Unfortunately I should have seen it coming because something was wrong. My physical performance was much lower than before, I was much more tired than before and more importantly, the more I caught the flu the less well I was and the longer I recovered. But at the time I didn’t really care because it was nothing compared to the hell I had been through for the last 6 long years. I was told I was just more fragile than most people. And then you think that there must be a twist… and unfortunately you’re right.
In the spring of 2021 I did what seemed like a burn-out, I was at the end of what a human body could endure both physically and psychologically.
And that’s when I knew it was happening again. After certifying me that I had never caught Lyme and after years of medical wandering, abuse, denial of the medical body, a word fell out.
ME.
I still had no idea what I was going to go through because I still had faith in the medical system.
That I was naive thinking about it, but nothing could prepare me for it, because it fell like that.
In the end we are never prepared for what lies ahead.
I rediscovered my taste for life by reorienting myself in 3D modeling and clinging to all the small successes of life that make it beautiful.
Now I’m fighting for my life, because every viral infection is taking it away from me.
I fight because I understand paraplegics.
I fight, because I understand the daily life of autoimmune people.
I fight because I understand people with AIDS.
I fight because I understand women who suffer from endometriosis.
I fight because disability is a daily struggle.
I found a passion that makes me feel alive, that allows me to create an imaginary world in which I am not sick, that makes me come out of my 4 walls.
Now I am 23 years old and my story is a story like any other, of a woman who dreams and hopes.”
