My first episode of severe ME/CFS symptoms was in 1974. I’m currently in my fourth episode, forced to leave a job I loved in 2019 (managing critical computer systems) when I became bedridden yet again. Now, I can only watch the world go by while I nap.
This is not the retirement I had planned. I discovered quilting as art therapy during my third episode, and it’s become my creative passion. I’ve sewed on board a quilt cruise to Alaska, and bought fabric souvenirs on bus tours of China, Japan, Spain, Ireland, England, and Germany. Tasting global cuisine is a beloved part of my travel adventures. Near home in Los Angeles, there’s always a museum to visit and lunch in the sunshine with friends. But those cherished dreams are out of reach for me now.
I send my love to all of you who have been constantly sick for decades. I welcome those of you who have had Long COVID and have recently been diagnosed with ME/CFS as well.
While I have recovered my energy and brain power from my previous episodes, I have no idea why. My case appears to be genetic, as my mother had years of similar devastating symptoms.
My goal is to raise money for research to find treatments or even a cure for our misunderstood illness. I am donating my time and materials for the jewelry and art sold through Chronic Market so that all profits go to research. Research is our best hope.
Hang in there🫶🫶🫶
Questions? Email me at: https://www.betsybarkermedia.com
Vendor Biography
Hello friends,
My first episode of severe ME/CFS symptoms was in 1974. I’m currently in my fourth episode, forced to leave a job I loved in 2019 (managing critical computer systems) when I became bedridden yet again. Now, I can only watch the world go by while I nap.
This is not the retirement I had planned. I discovered quilting as art therapy during my third episode, and it’s become my creative passion. I’ve sewed on board a quilt cruise to Alaska, and bought fabric souvenirs on bus tours of China, Japan, Spain, Ireland, England, and Germany. Tasting global cuisine is a beloved part of my travel adventures. Near home in Los Angeles, there’s always a museum to visit and lunch in the sunshine with friends. But those cherished dreams are out of reach for me now.
I send my love to all of you who have been constantly sick for decades. I welcome those of you who have had Long COVID and have recently been diagnosed with ME/CFS as well.
While I have recovered my energy and brain power from my previous episodes, I have no idea why. My case appears to be genetic, as my mother had years of similar devastating symptoms.
My goal is to raise money for research to find treatments or even a cure for our misunderstood illness. I am donating my time and materials for the jewelry and art sold through Chronic Market so that all profits go to research. Research is our best hope.
Hang in there🫶🫶🫶
Questions? Email me at: https://www.betsybarkermedia.com